tube day (hopefully)
jackson had another very bad day yesterday (even with our zen environment)… as paul said last night, “we are beyond tricks and distracting him with toys.” while i know teri has jackson’s best interest at heart, i totally agree with paul. both he and i fear going through the weekend without a G-tube. our plan for today is to place a call to jackson’s GI specialist (the good one who wanted the tube weeks ago) and request that he admit jackson over the weekend and place the tube. we are going to jackson’s scheduled therapy appointment this morning to make teri aware of all of this. my heart tells me that she will support us not waiting through the weekend, knowing all that we have been through already. waiting cannot be the answer for us… it wasn’t when i was told to wait out jackson’s allergy and continue breastfeeding him, and it’s not now.
the emails are still so amazing to me and i am eternally grateful. words of encouragement put a smile on my face that seems so priceless right now. dc family (you know who you are) has written asking who they can contact for us, offering up prayers and their homes… houston family has written in the midst of hurrican ike damage to offer prayers and their homes should we head that way with our magoo. they have an oak tree splitting their house due to ike and still their support and kind offers are unwavering.
mom is still here and unwilling to leave until we figure out how this weekend will go… should jackson be admitted, she will most likely stay with us and help to relieve paul and i while living in the hospital for who knows how long.
we shall see, my dear dear friends… this is our reality for today.
we will keep you all posted. i can blog from the hospital.
prayer is so grand.











