blog shmog and shit
i’m struggling with this blog shit. and today it is shit for me because i’m frustrated and tired and without something interesting to write about. and though i hate to be so “bleh” about it, i am.
FEEL FREE NOT TO READ ON…
jackson puked last night. which sucks. i honestly felt my heart sink when it happened and thought to myself, “ah shit.” i don’t know if it was a fluke. i don’t know if he’s picked up a bug from traveling for a few days. i just know that he’s not feeling good, because he “tells” me that by puking.
he kept his bottle down this morning, which is good, but wasn’t really interested in eating much else, which is not good. he’s sleeping a lot, which one would think would be a nice break for me, but in the back of my mind it’s a red flag that says, “jackson’s not feeling good. PAY ATTENTION!”
aside from the occasionally puking magoo, i have this blog. this “other baby” that i am trying to nurture and raise (more or less) and it’s really frustrating me right now.
i want this blog to “go somewhere” and “be something” but i’m not sure what that “something” is yet… or not sure how to go about getting there. i’m just plain old not sure. and i don’t like not being sure. it’s scary.
this call that i had yesterday from johns hopkins ended up making me feel like i had been dooped. i started receiving emails from their communications department a few weeks ago, expressing interest in our story, our blog, our son. i was stoked. didn’t want to be too stoked, but c’mon, when you put something out there like this and get a response, you get stoked.
so i spoke with this woman yesterday, finally making human contact regarding our story and what we can do with it to help others… or so i thought. basically what they want is to consult with me and two other families (who have done something similar to what i have done) on blogging.
WHUT?!
instead of asking me about jackson and his current status, (ill. not ill. puking. not puking.) she asked me about my friggin blog design. she wanted to know how my blog started and where i’m going with it.
I DON’T KNOW LADY!
and then she wanted to know if i would consider consulting with them on a hopkins blog, which (in her defense) could potentially be a good thing. if this is a project that links parents together as a support system/community, then cool, sign me up. if this is just a bullshit way of expressing interest in my child in order to get me to “create” a blog for you, then leave me alone. i have a sometimes-puking child to take care of.
which brings me back to my original point, i don’t know what i’m doing with this. i don’t know where this is going or where i want it to go.
I WANT TO CONNECT.
I WANT TO HAVE A VOICE. and yes, it would be nice if that voice were heard.
but i don’t want to be messed with, especially when it comes to my son.










Your blog is a place for you to have a voice. If right now it’s just you talking about what’s going on in your life, that’s okay. It’s relevant and interesting! I know I’m interested in reading about it!
What it develops in to will happen on its own. I believe that the answers manifest themselves when the time is right. : )
I’m sorry… I don’t really know you, but I can definitely “feel” your frustration!
I enjoy writing my blog, but in the back of my mind I’m thinking.. wouldn’t it be neat if my blog could actually BE something… something others would want to read… something I get noticed for (by people other than my closest friends and family)…
You at least have a meaningful reason and pertinent thing to be blogging about (and to have noticed)… I, on the other hand, just blog about the simple complexities of my life…
Anywho, good luck with the blog!… I enjoy it and I don’t even know you. You have at least “reached me” if that counts for anything… which it probably doesn’t, but oh well…
melissa- thanks for stroking my teensy ego.
guess it’s just one of those days…
Hon, your blog is something amazing and moving – even for people like me who are a LONG way from motherhood and who may not even be able to FATHOM what Jackson goes through. Your blog is fascinating, deeply touching, hilarious, and beautiful. Wherever you’re going, just keep going!
Aw, darlin. That sounds annoying and confusing. JH doesn’t know what it’s missing if it doesn’t take the chance to sponsor your blog, or to otherwise make you a “professional” blogger by giving you money for doing what you’re already doing. But the great thing is, “professional” blogger or not, you still get to be a serious writer, and that’s what this is all about. Your blog already IS something. I can’t remember what famous writer said “Never a day without a line,” but the blog lets you accomplish that, and lets your lucky readers (us!) enjoy the benefits. Keep up the good work, sistah!