tutu lady helps our klug crew
most of you loyal readers have kept up with my posts about the klug family. rachel and billy are two of our best friends as well as jackson’s godparents. they fought like hell to have the beautiful twins they are blessed with, 2 year old micah and malorie.
and most of you who have kept up with their story over the last few months, are aware of malorie’s ependymoma and the subsequent treatments she is now undergoing to battle the cancer.
so, i’m sure you can put two and two together when you watch the below clip from NBC nightly news that aired on wednesday evening… (you may want to grab some kleenex.)
Visit msnbc.com for breaking news, world news, and news about the economy
after watching that clip on wednesday night, i could not get to my laptop fast enough to look up the website for emmy’s heart, the nonprofit that laura pita created where you can visit her etsy shop and purchase the custom made tutus and capes.
Emmy’s Heart volunteers create tutus and crowns for BUTTERFLY PRINCESSES and capes and masks for SUPERHEROES undergoing treatment for serious illnesses or disabilities in South Florida.
Help bring joy to boys and girls who are fighting serious illnesses.
both paul and i looked at each other and knew that mal needed a tutu… like yesterday.
leave it to pregnant-brained me to have malorie’s radiation treatments on my calendar to start NEXT week, thinking i had a full 7 days to work on contacting laura pita and getting this tutu project going.
WRONG. mal went in today for her PICC line (IV access line) and begins radiation tomorrow. (side note: her appointment today went great and her PICC line procedure was successful.)
with 24 hours of knowledge that laura pita’s generous heart existed, i came to my senses and began correspondence with her. she has quickly responded and i can now say that my heart is EXPLODING with excitement for this family that means so much to us…
SURPRISE BILLY AND RACHEL! YOU HAVE A CUSTOM PINK TUTU BEING MADE FOR MALORIE, AND A BLUE CAPE AND MASK MADE FOR MAL’S BESTEST BUD AND BIGGEST SUPPORTER, MICAH! (both are currently being made and will be on their way to you next week.)
as soon as she gets a free moment to get the html code to me, i will attach a button both here in this post as well as on my sidebar to advertise laura pita’s etsy shop. in the meantime, you can learn more about emmy’s heart by clicking here, and visit her etsy shop here.
it is this kind of awesome that makes the internet so stinkin cool.
8 Responses to tutu lady helps our klug crew
Have a Sip
I didn’t have to watch the clip to need a tissue. Such a beautiful thing! I wish you and your friends love and luck on this journey.
I LOVE THIS! YAY for tutus and superhero capes!!
Jana A (@jana0926)´s last [type] ..Sleep: The Topic Thief
Mal and Micah are going to love the new garb. Thanks, Nicole. And also thanks for distracting me… I am supposed to be working right now.
BK
Love this! Continued prayers for them and thanks for keeping us updated.
Titania (Atlanta Green Mom)´s last [type] ..Clearly I’m Not Your Target Market
I saw that segment run live. Such a great idea. You’re a true, dear friend and the Klug’s are lucky to have you.
Dana´s last [type] ..Word Association with Santorum
that is so beautiful – you are an awesome friend & the tutu lady is inspiring. Hannah’s had her picc line removed and a port-a-cath put in (lots of drama, but worth it so her treatment can continue – see the drama here lymedownunder.tumblr.com/page/3 ). Not all the time, but sometimes when she is up to it, when we go in to oncology to get her needle/dressings changed she dresses up in 1950′s clothes with the hair and shoes to match – I guess the 17 y.o. equivalent of a tutu! Thanks for sharing – it restores your faith in humanity when you see ordinary people doing great stuff like this….
Oh my goodness this is amazing! I am always bowled over by such amazing stories and wanting to find any way to help lift the spirits of kids in need. My niece has Mitochondrial disease and has spent more time in the hospital than out in her two years of life. She will never life a full life and it most likely will not be long so I am sending her a tutu STAT! She should be able to spin in such a beautiful thing.
LOVE THIS!
Brittany {Mommy Words}´s last [type] ..Sharing Grief: 5 Months After Losing our Baby
just total beauty. much love to them…all of them, everywhere.
alisha´s last [type] ..miss you, fever